New charity ale from The Chiltern Brewery – 5p of every pint going to #SupportSophieEdes who lives with Rett Syndrome.
The Chiltern Brewery has brewed a beer to raise money to help Sophie Edes, the 3 year-old grand-daughter of a retired member of The Chiltern Brewery team. Parents Liz and Mark Edes, from Berryfields Aylesbury, were left devastated when Sophie was diagnosed with Rett Syndrome; an illness which means she will be unlikely to ever speak or walk.
The annual charity beer will help raise awareness and much needed funds. Every pint of the new ale sold will raise 5p for the JustGiving campaign, which will help the Edes family buy specialist eye-gaze equipment for Sophie, to vastly improve her quality of life.
They are also running a raffle at their brewery shop in Terrick to win one of their unique Head Brewer’s Hampers. At £1 per ticket they hope to raise further funds to help with the JustGiving campaign. As well as buying the charity beer, you can also support by spreading the word via @chilternbrewery social media channels with #SupportSophieEdes.
Pride is a dark amber brew, with a smooth roast malt taste and a citrussy aroma, the 4.2% vol ale uses the best Class A Maris Otter, Crystal and Roast Barley malts combined with Goldings, Fuggles and Cascade hops to produce a classic English best bitter. It is available on draught, in mini casks online and in pubs across the region. If you do manage to get hold of some, don’t forget to use the hashtag #SupportSophieEdes. Collect online here and at their brewery shop in Terrick.
Rett Syndrome is a rare neurological disorder affecting mainly females and very few males. It is present from conception and usually remains undetected until major regression occurs at around one year of age, when children may lose acquired skills and become withdrawn.